Please Donate Today: FRAXA Research Foundation

FRAXA logoWE ask for no money in running this site. We don’t take contributions. It’s a labor of love. But I want to do my best Jerry Lewis impersonation…

I would like you to pledge something to our official charity, FRAXA Research Foundation. The money goes toward finding a cure for an esoteric genetic disorder that I know next to nothing about. All I know is that it’s a good cause with administrative costs that are low (possible as low as 5% but I’ll have to verify this).

The goal for StubbornThings is $250.00, a rather modest amount. We won’t be doing something like this often because I know that none of you are made out of money and neither am I. And none of us like being hectored and guilted into this type of stuff. It can just get annoying.

But just this once. So I’ll start things off with a very modest $20.00 pledge. Add your pledge amount to this thread so that we can keep a running total. As soon as we hit $250.00, I’ll remove this as a “sticky” article and replace it with a good Obama rant. Whether $10.00 or $50.00, don’t be shy, modest, or ashamed of whatever amount you give.

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33 Responses to Please Donate Today: FRAXA Research Foundation

  1. Kung Fu Zu says:

    Brad, I am good for $25.00. Although it is not a large amount, it is a concrete attempt to do something to help solve one of the world’s many problems.

    • Brad Nelson Brad Nelson says:

      Wow. That’s pretty generous, Mr. Kung. I think this particular charity is a good one because it’s bound to help children first and foremost. And this is one of those diseases that, as far as I can tell, is just the result of bad luck. Okay, if someone wants to give their money to aids research, fine. But that is an entirely preventable disease.

      This one is not. I’ll let this charity event ride until the end of September or until we’ve reached $250.00, whichever comes first.

  2. Brad Nelson Brad Nelson says:

    I was looking at the faces of those children on the web site. They’re all smiling and happy.

    And you see some of those Downs Syndrome children with their parents at the mall, for instance, and many seem quite happy. It’s become somewhat of a stereotype. Remember Chris Burke who played Corky Thacher on the TV series “Life Goes On”? He had Downs Syndrome and played a child who had Downs Syndrome. And eventually you can’t imagine anyone else but Corky/Chris.

    But I realize that there’s the other side of this. A lot of the children are not blissfully happy but struggling and frustrated and sometimes in great pain because of their handicaps or conditions. And certainly anyone with a schizophrenic child (although I believe that disease tends to manifest itself in the teen and adult years) would surely immediately and without question give their child a pill if it would cure them. That is a horrible disease, coming and going.

    And I don’t have any children and all my nephews were thankfully born very healthy. So I don’t know the emotions a parent goes through when their child is born facing a special challenge. There must be a lot of sadness, shattered dreams, and lots and lots of extra work and costs when it gets right down to it.

    But seeing those warm, smiling, happy faces of the children on the FRAXA web site, I wondered what would go through a parent’s mind if there was suddenly a pill that would cure their child. Is there any possibility that one would hesitate because that child, for better or for worse, already has an identity as the person they are and that curing them, while a wonderful thing, might be a bittersweet thing because you would lose that child?

    I sometimes look at Downs Syndrome children an in a moment of self pity and indulgence and think “You’re lucky. Your flaws are all easily seen and people will cut you some slack. But the rest of us, none of us is perfect. We all have flaws, usually hidden and thus not particularly conducive to human sympathy.”

    We are, to a great extent, defined by our flaws. In a real sense, a perfectly normal, perfectly adjusted person might quite possibly be the equivalent of a human bowl full of gray jelly. It is often our imbalances that propel us to good and great things (and sometimes quite horrible things, of course).

    And we have no choice but to be flawed. We can all think of ourselves as mere shadows compared to the perfection of a Creator. We exist apart from the whole only because we are not whole. This gives us individuality but also burdens us with imperfections, sometimes very painful imperfections. But to a very great extent, they are a very large part of who we are. A perfectly-balanced anything knows no motion, motivation, or internal struggle. The possibilities for nobility, artfulness, and meaning are reduced, if not eliminated.

    I don’t wish to downplay the plight of children born with quite debilitating diseases. This thread is here so that we can do our small bit for just one ailment. But it makes you think.

  3. Katie Clapp says:

    Hi,
    I’m one of the founders of FRAXA Research Foundation, and my 24-year-old son has Fragile X syndrome, which he inherited from me (I’m a carrier). Helping our son and all the others with Fragile X is a lifelong mission. So I can’t thank you enough, Brad and everyone else who is taking the time to learn about our disorder.

    Brad, your comment about the happy children featured on fraxa.org has really got me thinking. The truth is that most of our kids are rarely happy – they are anxious, terrified of sounds and new people and new places. Most of us families are home-bound much of the time, because there’s nothing scarier than a meltdown in a place like Walmart or a parking lot, with your son thrashing on the ground, out of control. What we want most of all is happy children. And so parents send me pictures of the best and happiest moments of their children’s lives, and of course they are so beautiful that those are the ones I chose for the website. Those are the moments we treasure … we are hoping for a pill that brings us more of those happy moments. We know it’s possible just by looking in those beautiful children and seeing their potential. But it’s probably a mistake to only feature the happy moments.

    Thank you again for all the support … it means the world to us!!

    • Brad Nelson Brad Nelson says:

      Thanks, Katie, for taking to the time to give us further information on the FRAXA Research Foundation. And whether or not all the faces of those stricken by the genetic disorder are smiling faces, it is good to see them.

      I know that it goes without saying that the parents of these children can use all the support they can get, even if it is only emotional support. But there is the real issue of hard cash. And I know that it is money that keeps the wheels turning in regards to research for a cure.

      Americans have always been generous in this regard. And I’ve set a modest goal of $250.00 for this site. And I hereby pledge to make up the difference if we don’t meet this goal by the end of September. I was thinking of getting a new book reader. But I’ll gladly forgo that. Only the members here can keep two things alive, the fight for a cure for Fragile X and my new book reader. 🙂

      I hope the former cause is inducement enough. But the latter just sweetens the pot. Thanks for showing up here and helping to spread the word.

  4. pst4usa says:

    OK Brad, I sent $25.00 also.

  5. Brad Nelson Brad Nelson says:

    I’ve been in contact behind the scenes with this Foundation and someone with a child who suffers from this genetic defect that is called “Fragile X.”

    I have a relative who has a slightly autistic child and he’s a really great kid. He even likes me, although I don’t know why. But my experience with those who have “special needs,” as they say, is fairly limited.

    But I’ve been told that if there was indeed a pill that would cure a child of this genetic disease, most parents would probably give it to their children in a heartbeat and deal with any adjustment problems that came with it, and gladly so.

    These parents who have these children are heroes. I almost tear up (almost, mind you….I’m not a girly-man) when I hear Sarah Palin talk about what a blessing her Trig is who has Down syndrome. Apparently 90% of such children are aborted.

    Her story is truly the “smiling face.” But there must be a lot of sad faces behind the scenes as well. Surely there are a lot of parents who didn’t have the strength, grace, or faith of Palin. I would imagine it is not uncommon for marriages to be stressed, even destroyed, by having to deal with a handicapped child. Certainly such a child (or, really, any child) leave little room for narcissists and those who are obsessively self-centered.

    So let’s wipe this “sticky” article for FRAXA Research Foundation off of the front page of StubbornThings. We don’t have better things to do, but we do need to show that we are not just the same narcissistic talking-heads crowd of pseudo-conservatives who just like to bitch and whine and not act. Click this link and donate $10.00. And when you do, post here that you did so what we can keep a running total.

    This is a good cause. Let’s get it done and get that total of donations to $250.00. Besides, I really do need a new book reader. (See one of the posts above.)

  6. Brad Nelson Brad Nelson says:

    I don’t see the donation counter clicking. Come on, people. Ten bucks. You can do it. And when you click this link to do so, let us know here how much so that we can keep a running total.

    I’ve always heard it said that conservatives were more generous than liberals when it came to charity. Well, $250.00 for this entire site is a very modest goal. Prove that you’re not just rank bitchers and complainers and can also walk the walk.

  7. Brad Nelson Brad Nelson says:

    Geez, Jerry Lewis makes this look so easy.

    Come on people, I’m still waiting for those donations to flood in. All we need to do is make it to $250.00. And we’ve already got $80.00. Just click on this link and donate $10.00 or whatever you can afford.

    I said earlier that I had very little experience with the handicapped. I’m not sure why I forgot about the lady who lives directly across from my office.

    She is deaf and dumb and I think she has a slight mental handicap as well. She lives alone in a small duplex and spends her time sweeping the street. She says she hates leaves. The end result is, we have a near spotless road in front of our office going for at least fifty yards up and down the road. She’s almost literally out there all the time in the street (deaf and dumb) sweeping something or other. How she has not been run down by a car yet is a near miracle.

    Anyway, I’ve somehow become her ears and vocal chords. She’s often needing to deal with the outside world and so she’ll stop by my office unannounced and show me a written note with her latest need. And I, of course, drop everything and help her. Usually all she needs is for me to make a call for her. But sometimes it’s something more.

    I don’t even think of her as being handicapped anymore. She is just who she is. And someone told me that it’s still pretty common for such people not to receive even the barest of sympathies. And I guess this is so. And if I look back at my own childhood, we weren’t always so nice to those kids who were a little different.

    And I do remember one time where the neighbors of this woman (a couple guys in their 20’s) were hassling her for some reason or another. She came over to me to see if I could straighten things out. I don’t remember the circumstances because the deaf lady can get pretty excitable and it’s very difficult to know what she means even if she tries writing it down.

    Anyway, I got my gander up and went over and talked to these fellows and asked what the problem was. They said that she kept dumping leaves or something over the hedge that was between their houses. I don’t remember what it actually was, but it was something very minor like this.

    And here were these two big guys with two good legs, two good arms, and a sets of ears and eyes and mouth that were fully functioning. And they couldn’t even make the smallest accommodation for this lady who was quite obviously both harmless and handicapped. I subtly shamed them into lightening the hell up.

    I still get asked by people what this lady is doing all the time sweeping the road. They think it’s odd, as if perhaps it should be stopped. And it is kind of odd. But it’s what she enjoys doing. This lady is happy as a clam when doing her sweeping and cleaning of the road. Why bother her? Why even see it as something odd that needs any kind of explanation?

    That has become my attitude. When this lady is out there doing her thing, she usually won’t acknowledge you. But I wave at her anywhere as I leave the office every night to go home….or just leave to make a delivery in the middle of the day. And every once in a while she will wave back. And I know she’s there. But she usually does not acknowledge anyone and just stays in her “zone.” And a time or two she has even waved to me first, which is always surprising and heartening. I know she’s there.

    Now, if the above story isn’t worth ten bucks to FRAXA, I don’t know what is.

  8. LibertyMark says:

    $50 for me. Got some bonus money. A small token in the name of “a friend of stubbornthings.org”

    • Brad Nelson Brad Nelson says:

      Holy smokes. That’s incredibly generous of you, Mark. That takes us up to $130.00. I hope that some others can follow your commendable example. Thanks a bunch. Like I said, I don’t plan on doing this again (well, maybe something next year). So this isn’t going to be a great big deep pit of money that y’all have to keep contributing to.

      So let’s just do this one time and get it done. It’s a terrific cause.

    • Kung Fu Zu says:

      You are shaming the rest of us. I will add another $25.00.

      • Brad Nelson Brad Nelson says:

        Holy Fragile X. Not looking as fragile as before. Mr. Kung (who has already contributed) has thrown down the gauntlet. That takes us to $155.00, if my math is correct.

        Thanks, Mr. Kung. Only heaven knows the rewards (and sacrifices) surrounding this kind of project.

      • pst4usa says:

        I agree Mr. Zu, Brad I just gave $25.00 more.

        • Brad Nelson Brad Nelson says:

          Listen, I don’t want to get all sentimental. As I often tell my good friend, Pat, I’m not particularly fond of girly-men. But you guys show what is best about America. I really mean that. (And you’re saving me some money as well since I’ll make up the difference if we don’t reach $250.00).

          I think Pat now puts us at $180.00. So at worst I’ll have to kick in $70.00 to make of the difference of the overall pledge of this site of $250.00. I think I could still manage buying a new book reader out of what is left over.

          But that’s not to say that we should stop. I don’t know that I’ve yet heard from the libertarian wing of the party, although I confess I do not know Mark’s orientation, nor do I care. But surely there are some libertarians out there who can pony up. I’ll even (I can’t believe I’m saying this) graciously accept contributions from Paulbots. When it comes to children and genetic disorders, there is no “Real Lincoln,” only the need to finance a cure.

  9. Brad Nelson Brad Nelson says:

    Okay, you conservatives out there need to prove you’re not a bunch of cheapskates. We’re not far from our goal of $250.00. We’re at $180.00 and just need a few more people to put us over the top. You can click this link to donate.

    Wow, this Jerry Lewis fundraising stuff is tougher than I thought. Would it help to tell you another story? Maybe about the one where Jerry Lewis told my father to eff-off?

    It’s a true story. Mr. Lewis was engaged to do a benefit at a Veterans’ home. My father was emceeing the event. Well, Lewis finally shows up — late — and then proceeds to tell everyone backstage how everything is so effin’ wrong and screwed up. Later we found out that Lewis was in the grips of a drug problem during this stage of his life. But that didn’t do much for my father and his shocked group of volunteers at the time.

    Lewis was throwing f-bombs left and right. They finally got him cooled down and got him onto the stage to at least say hello to the waiting veterans. Lewis jabbered a few words and then took off in a huff. This all happened so fast, and was so unexpected (everyone just figured Lewis was a saint due to his work with his famous charities) that everyone was in a state of shock.

    This story actually made it into the National Enquirer where there was a picture of Jerry Lewis yelling at my father and my father sort of bending down, as if bowing, trying to placate this monster. Drugs are bad.

    So, if that story (and it’s a true one) isn’t worth ten bucks, what are you doing calling yourself a conservative?

  10. pst4usa says:

    Now your are trying to tell us that drugs are bad? You can just go elf yourself Brad. (by elf yourself I mean put on funny clothes, pointy hat and pointy shoes). You do know if you trash talk drugs you will be called a liar and a neo-con practicing your neo-conism. LOL.

    • Brad Nelson Brad Nelson says:

      Hahaha. I didn’t read that as “elf” the first time around. I’m going to save that for a good headline title come this Christmas. Thanks, Pat.

      And still looking for some donors. You, Mr. Kung, And LibertyMark have been very generous. And I keep thinking up old stories and episodes that have to do with the handicapped. Still trying to tug those heart strings. Mr. Lewis made it look so easy. By the way, he’s still a favorite comedian of mine. Forgive and forget. But one message to come from this: Drugs are bad.

      Have you ever seen Russell Crowe in “A Beautiful Mind”? It’s sort of an artsy-fartsy movie. I’m not sure how to categorize it. But Crowe plays a famous character who suffered from schizophrenia, and that is one scary disorder.

      Anyway, I was thinking of this one chap we used to call “The Professor.” For years and years he walked the streets in and around my office. He did no harm. But every once in a while he would be on the street corner having an argument with someone who wasn’t there. He just became a fixture of our neighborhood. We didn’t laugh at him or mock him. We just noticed him.

      And, of course, we had to give him an appropriate name. I’m not sure how he came by that name. But there truly was something otherworldly about him. And because he was usually so well-dressed in his tan tweed suits, I guess the name sort of found him.

      He was around and and about our neighborhood for years and we’d just say hello to him and he’d say hello back. He wasn’t always talking to people who weren’t there. And we didn’t make fun of him as much as we just had to acknowledge what was certainly unusual behavior, at least to each other.

      I think I just saw him again today getting money from a cash machine at the supermarket. He always was dressed well. I say I think it was him because he has gotten older, as have we all.

      I think he eventually did get some treatment, or at least treatment that works. I’m not sure what progress has been made since the mid 80’s but I’m sure some has. And that is not a life I’d want to wish on anyone.

      So put forth your $10.00 or more (not you, Pat…you’ve done enough) and click on this link and tell us how much you donated so that we can add it to the running tally.

      It would be great if some child not yet born was able to benefit from it in years to come. I know that The Professor certainly has benefited because of the research into schizophrenia.

      And as a fitting twist, the office that we rented in the mid 80’s in the neighborhood of The Professor is now a mental health clinic.

      • pst4usa says:

        I have seen “A Beautiful Mind”, I enjoyed it, and you are right, what a terrible disease. It is not quite the same, but after my father, had a major stroke, his short term memory was gone. He would start a sentence and forget what he was saying before he could finish it. Incredibly frustrating for someone who was always very cerebral, physics and math professor early on. For awhile he learned to deal by joking about it, but it really eat at him, and the more frustrated he got, the worse the symptoms were.

  11. Brad Nelson Brad Nelson says:

    We had some thunder and lightning last night, and that tends to play havoc with DSL modems and other electronics. In fact, my cable modem got knocked out yesterday and I had to reset it which is kind of a pain in the ass.

    So I come in this morning to work, and after slamming down my morning Diet Coke, in comes my deaf neighbor were her problems. Her cable TV was out. You can ask nearly anything of me, but don’t interrupt my morning Diet Coke quiet time.

    Oh well. So I played St. Francis for the moment and dropped everything and spent about thirty minutes on the phone with Comcast…most of that time either on hold or going through their menuing system from hell. It was made all the worse because this automated menuing system kept wanting her phone number. She doesn’t have a phone.

    And then it wanted her Social Security number. She doesn’t have that at hand. (She’s standing beside me in my office while I’m on the phone.) I have to call back a couple times to try to get this process going. Finally I get to the point where it asks for an account number. So I ask this lady to run across the street and get that. She does and returns with her account number (about 20 digits) which I punch into the phone. I was in Catch-22 hell.

    Several minutes later I finally push various combinations of numbers on the keypad (no…NO! I don’t not need to speak in friggin’ Spanish. I’m in America, for Christ’s sake). And at some point I get to a real, live person. She begins asking me all sorts of questions about the cable modem, what is showing on this lady’s screen, etc.

    I try to tell her that I have no idea what is on the TV screen. The TV is across the street in her house, not in my office. Not only that, but communicating with this deaf and dumb lady has its challenges in trying to get any of the information the tech support person wanted. I’m getting kind of frustrated with this customer “service” so I stoop down and play the “handicap card.” Hey, I’m not above such things. I asked if they made any kind of accommodation for “special needs” people. Could they just send someone over to her house?

    Well, that got me nowhere. I was told by their customer service that they could send a tech guy out but that it would cost a pretty hefty service fee.

    So I told her that I would go check several of the normal things that could be causing problems and see if I could troubleshoot it myself. I then asked her if she had a direct line that I could use to call her back to avoid the labyrinthian phone menuing system. No, but she could call me back in 15 minutes.

    Okay, good. So I go over to the deaf lady’s house and poke around a bit, try a few things, and eventually got her cable TV up and working. Oh, and I had forgot to mention before when talking about this deaf lady that she has someone who lives with her (a younger brother, I believe) who is quite retarded and a completely dependent on her. Obviously without cable TV, his world would shrink considerably. You don’t know how good you have it until you see these honestly pitiable people. He cannot talk. He just grunts. He can barely walk.

    Anyway, all’s well that ends well. And I’m finishing my Diet Coke even as we speak. And I’d be disappointed if at least a few of you couldn’t find a way to donate ten stinking bucks to this FRAXA charity. I will gladly make up the difference if we don’t hit $250.00. That’s not the issue. The issue is doing something, no matter how minimal, to help those who genuinely need it. America right now is full of charlatans, thieves, and “social justice” criminals. There are so many people who are illegitimately taking our money. And I know this can leave little left to give. But there are people who deserve a little bit.

    You can click this link to donate. Then post in this thread how much you donated so that we can keep a running total and reach our goal of $250.00. Thanks.

    And the Comcast customer service rep did call back and she was very nice about it. But, good golly, I am so friggin’ tired of those menuing systems. I bet you would all gladly donate ten bucks or more if it went toward extinguishing those awful things.

  12. Brad Nelson Brad Nelson says:

    I forgot the punchline to the above story. Mind you, when communicating with this deaf, mute, and slightly handicapped person, it’s difficult to get the precise details of what she is saying. But I think she told me that the thunder and lightning scared her cat and caused it to jump behind the TV where the master remote (the one you need to keep tuned to channel 3) was sitting. I think she was trying to intimate that the cat may have inadvertently changed the channel.

  13. pst4usa says:

    I hate that when cats go around and change channels like that. Damn those cats.

    • Brad Nelson Brad Nelson says:

      I know it. And that’s how I got that information….at the very very end of this small ordeal. And I had to laugh. The situation was wonderfully absurd. What a way to start the week. Actually, it was a good way.

      • Kung Fu Zu says:

        Unlike too many people on the internet who claim they want to do something to help, you are in fact doing your part.

        I think you are beginning to understand a little bit about what handicapped people, and their families go through. You are saving up merit points for your next life.

        • Brad Nelson Brad Nelson says:

          Thanks, Mr. Kung. I’m just trying to do my best Jerry Lewis impression and drum up a few bucks for a worthy cause. But, yes, the more contact one has with “special needs” people, the more sympathy and understanding one can develop.

          But then, honestly, I never looked at this lady across the street who spends most of her spare time sweeping the leaves off the streets as being particularly odd or in need of my condescending sympathy. We have an evil Marxist as president, and yet he is touted by many as not only normal but exemplary.

          I’m not quite sure who is more exemplary, the one who is harmlessly sweeping the streets in workman clothes or the one who is trying to deconstruct America in a suit-and-tie. Well, maybe I do know the answer to that.

  14. Katie Clapp says:

    Mornings are the hardest part of my day … getting our son, Andy, out the door. I bet a lot of parents would say the same.

    Andy has Fragile X Syndrome and he is obsessive. Every morning he collects great piles of stuff and stacks it on top of his backpack. Stuff can be toys (all broken now), recycling he grabbed from the garage, every soda bottle in the house (if only my husband could give up Diet Coke we could get rid of that problem) … just anything he can find. Then it’s my job to unpack it all and not get him upset so he will go to his day program.

    Also, my son is 24 years old, and this has been going on for 20 years. Will it be this hard when he’s 48?

    That’s what FRAXA Research Foundation is about. There are a lot of parents like me who can’t imagine living like this forever, and most of all, are afraid to imagine their children’s lives when they are gone. That’s why we started FRAXA Research Foundation. We really are making progress toward finding treatments. The hope alone has helped many FRAXA parents, but we can do more if we can keep funding research to find a cure.

    So thank you ever so much, Mr. Nelson, for featuring FRAXA as your charity. And thank you to everyone who has donated. It means to world to parents like me. It all adds up and brings us closer to helping families with Fragile X. And if you would like to meet my son, Andy’s page is http://www.fraxa.org/tranfaglia/

    • Brad Nelson Brad Nelson says:

      Thanks for the information on your wonderful child. I read your web page and all I can say is that sounds like the real story. Not having any children, I didn’t realize that perhaps the main concern of parents is “How will my child get by when I am gone?” As stupid as this sounds, that’s not the first thing that occurred to me. But it is what I have heard now from more than one parent.

      And I do mean that you have a wonderful child. Andy fills me with wonder. The emotions range from pity to wonderment. Surely taking care of Andy is mixture of truly hard word, dedication, exasperation, and I’m sure a few other things. And yet, at least as seen from afar, I can’t help seeing a kind of wonderful innocence in Andy, even though it’s obviously a painful one much of the time. He is indeed a special person.

      Anyway, I broke out the credit card and added $50.00 in Andy’s name. Talk is cheap, although necessary. But FRAXA does need the hard cash. That gets us down to needing only $30.00 to meet this site’s goal. I want somebody who has not already contributed to step up and finish it off.

      Thanks again for telling us more about your organization, Katie. I’ll leave this main article here until the end of the month (or until someone comes up with that $30.00) and then rotate a small add along the sidebar to the right. My best to your family.

  15. Katie Clapp says:

    Brad you are truly generous! Thank you very much for all your help!!

    • Brad Nelson Brad Nelson says:

      Thanks, Katie. And my hearty thanks to the generous hearts and minds of Kung Fu Zu, Pat (pst4usa), and LibertyMark. I know that not everyone can afford to give even ten bucks to a good cause. And many are already donating behind the scenes to the causes of their choices, and often in great amounts. Some tithe 10% or more to their churches, for instance.

      But I really hoped we’d do a little better. I’m actually a bit disappointed that more of the conservative and libertarian brothers and sisters couldn’t find the price of a pizza to give to this worthy cause.

      And, myself, I wasn’t being generous so much as paying penance. I don’t make a lot of money. But even then, I haven’t given much to charity in my life, just a bit here and there as the cause arose. And this cause arose and it seemed like a good one. We have a political establishment in this culture right now that simply uses children to aggrandize themselves and amass power. The claim to do everything “for the children.” And I’m not buying it.

      But I can’t personally think of a better cause than the health and welfare of children. So here was an opportunity to do so and I think we have failed. I started this site with the hope of getting people to expand beyond their narrow (but clever) bitching and complaining and do something more positive. This site is supposed to be more than about yet another outlet to bitch and complain, to basically chew on one’s red meat.

      But the failure is mine. And I accept that. But it’s a glorious failure. If I gain no more from having created and developed this sight than the friends I’ve met so far, and especially learning of their and their children’s struggle with the Fragile X disease, it will have been worth it. The thanks goes to you, Katie, for giving us this opportunity to do a little something of substance other than the usual pointless bitching and complaining about politics.

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