2016 Pledge Drive for FRAXA

FRAXA-thumbby Brad Nelson8/23/16
It has been a couple of years since I nominated Fraxa Research Foundation as StubbornThings’ official charity. I believe it is time to remind our readers about this fine organization and to open their wallets once again. Donate here.

Fraxa Research Foundation was founded over twenty years ago by parents of children afflicted by Fragile X Syndrome. Fragile X syndrome is the most common inherited cause of autism and intellectual disabilities. The disorder is the result of one gene malfunctioning and not producing a specific single protein, which is required for normal development of the brain.

Fraxa’s goal is simple — to find a cure for Fragile X Syndrome. In pursuit of this goal, Fraxa has funded $25 million in scientific research across the world. Some of this research may also help find treatments for autism and other mental disorders.

To give you an idea of the quality of the research being funded by Fraxa grants, it important to mention that there are three Nobel Laureates on Fraxa’s Scientific Advisory Board. One of these is Dr. James Watson, the discoverer of the DNA double-helix.

Some of the research projects presently being funding by Fraxa are;

1) A project at the University of Texas at Austin lead by researchers Daniel Johnston, PhD, and Jennifer J. Siegel, PhD,  in which they are trying to improve memory in fragile X mice.

2) A project undertaken by French scientists Barbara Bardoni, PhD, and Thomas Maurin, PhD, to identify new drugs to improve treatments in patients with fragile X.

3) Fraxa has also funded one of the founding scientists of Fulcrum Theropeutics, Jeannie Lee, MD, PhD, of Harvard University, and has been working with others on the new Fulcrum team. Fulcrum’s aim is to develop small molecules to control gene expression in order to control genetic on- and off-switches of disease genes.

At the risk of being redundant, I believe it’s time that conservatives stop bitching about the state of things and actively do something to make the world a better place. We’re supposed to be the compassionate people who believe in direct action rather than just sitting around waiting for government to solve our problems. Contributing to Fraxa Research Foundation meets this requirement.

Click here to go immediately to the Fraxa page where it is as easy as pie to make a small donation. You may even send a check by mail. Once you do either, post what you’ve donated here so that we can keep a running total. The goal is a modest $200.00.

I won’t bore you, or insult your intelligence, by saying that contributing even just $5.00 is like skipping one trip to Starbucks. If we measured everything in this way (via liberal guilt, that is) we’ve never drink another damned cup of coffee again in our lives. So keep your coffee, but surely you can do without adding that one bit more to your tattoo. Or buying a pack of Pokemon Go lucky eggs. Or buying the latest crap pop CD full of screeching noises. You can find a buck or two somewhere. There but for the grace of a shorter FMR1 gene on the X chromosome go I.

This isn’t about help for people who through their own abuse of their bodies have come to harm. These are truly the innocents, just a bit of bad luck with that FMR1 gene sticking out a little and switching off production of a needed protein that is involved in brain development and other functions. This isn’t some stupid-ass university dean asking for money to build a “safe space” for punk-ass, liberal-ass Pajama Boy and Pajama Girl students. This is the real world…which still exists. And try to tell me that a $5.00 donation won’t make you feel as if you’d done something real in this world that is increasingly a product of unreality, of scripted marketing and baloney.

I’ll start by ponying up $25.00 to get things going. But don’t make me beg. Consider $5.00, at minimum, penance for voting for or supporting Trump. And just an an incentive, if by the end of September the totals reach $300 or more, I will vote for Donald Trump for president. There’s your incentive if helping a child (and perhaps your child or future grandson) were not enough of one.


Brad is editor and chief disorganizer of StubbornThings.
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Brad Nelson

About Brad Nelson

I like books, nature, politics, old movies, Ronald Reagan (you get sort of a three-fer with that one), and the founding ideals of this country. We are the Shining City on the Hill — or ought to be. However, our land has been poisoned by Utopian aspirations and feel-good bromides. Both have replaced wisdom and facts.
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46 Responses to 2016 Pledge Drive for FRAXA

  1. Timothy Lane says:

    I’ll think about it. Elizabeth and I are in a difficult financial position due to the need to move out of a house we can no longer manage ourselves, but a small donation might be possible. It helps that it can be done by mail, since I don’t like paying anything on-line.

    • Brad Nelson Brad Nelson says:

      If you can’t personally pledge, then share this article on Facebook or wherever. Or hit up a friend. Surely it’s worth five smackeroonies just to buy Trump a little more support. 😀

  2. Anniel says:

    Brad,

    Bear said he wishes we could have done $301.00, but we could do only $50 right now. Too bad, I could have held your feet to the Trump fire for a few minutes.

    • Brad Nelson Brad Nelson says:

      Anna, I know you’re dealing with some stuff and didn’t expect even one dime from you or Bear. I’m sure Bear is just yanking my chain and really would spend $301.00 to see me vote for Trump. 🙂

      But, seriously, I know a lady whose child has this genetic disorder and I’ve even met the child (a sweet kid). This is very real to me. I’ll likely give a little more to make up any difference on the way to $200.00. But I’m counting on the good people here to put aside any differences and just do $5.00. It all adds up. If they can do more (as you and Bear did), then great. I’m astonished by your generosity. I’m sure all the parents of the children suffering with Fragile X have it in their hearts to thank you as well.

  3. pst4usa says:

    I donated Brad, but I will not say how much, because I do not want you to have to vote for Trump. Your vote is far too valuable to give it to someone like Trump.

    • Brad Nelson Brad Nelson says:

      LOL. Okay. Well….given that you are our Koch Brother, and have special exemption as Annie does, I will add your total to the goal to reach $200.00 but will count only 25% of it towards the Trump vote. Will that work? And keep in mind that I’m in a fairly deep blue libtard state (not state of mind but state as in geography…but, geez, I think I’m getting there too).

      And thanks, Pat. You have a heart of gold. And for those suspicious of my motives, I haven’t yet found a way to skim off a “service charge” fee of 15%. The transaction is done right with FRAXA with no middleman. I’ll try to get that implemented for next year. Daddy needs a new pair of iMacs…or something like that.

  4. Katie Clapp says:

    Brad, I am one of the parents who founded FRAXA twenty-odd years ago, when my son Andy was 2 years old and not doing so well. He is 27 now, still struggling.

    Thank you and all your readers for learning about Fragile X Syndrome and for supporting our work! We are finding a cure. No matter how long it takes or how hard it is, we are bringing that cure closer, for all the children like Andy who deserve better.

    • Brad Nelson Brad Nelson says:

      Thanks for taking the time to give us a word of thanks and encouragement, Katie. It’s a perfect opportunity for me to urge one and all to click on the link provided in the above article and give five dollars to a good cause. Some here have been extremely generous. I don’t know what the others are waiting for. Good luck to you and Andy.

  5. Thank you Brad and all of those that are helping FRAXA find a cure! My son is 4 with FXS and this foundation embodies hope! Along with Katie, I believe the cure is not far off and every little bit helps!

    • Brad Nelson Brad Nelson says:

      Thanks, Jessica. I’m donating $10.00 more just because you bothered to take the time to say thanks. That brings the StubbornThings grand total to $85.00…plus whatever Mr. Tarzwell has anonymously given (which I’m guessing is in three figures).

      I hope others can be so moved to at least do the very minimum. From what I’ve read, the work being done on fragile-x is potentially applicable to other genetic conditions. Every dollar is a shot in the arm to basic research. Considering how much of our money is wasted by government, giving even a small amount to an organization which such a targeted and important goal would seem to me to be a real tonic for the soul.

  6. Ted Coutilish says:

    As a parent of a struggling 15-year-old son with Fragile X Syndrome who is heading to high school Tuesday who isn’t fully potty trained and does not speak, I can’t thank enough all those who have contributed generously to FRAXA, all those who work tirelessly in labs all over the world to finding a cure for fragile X and to all those at FRAXA who donate selflessly their time and energy to the cause. Thank you all!

    • Brad Nelson Brad Nelson says:

      Cha-ching. Anyone who bothers to spread the word on a good cause is okay by me. I’ve throwing in ten more dollars. Thanks for the feedback, Ted.

  7. Kung Fu Zu Kung Fu Zu says:

    This isn’t about help for people who through their own abuse of their bodies have come to harm. These are truly the innocents, just a bit of bad luck with that FMR1 gene sticking out a little and switching off production of a needed protein that is involved in brain development and other functions. This isn’t some stupid-ass university dean asking for money to build a “safe space” for punk-ass, liberal-ass Pajama Boy and Pajama Girl students. This is the real world…which still exists. And try to tell me that a $5.00 donation won’t make you feel as if you’d done something real in this world that is increasingly a product of unreality, of scripted marketing and baloney.

    Matthew 25:31-46

    31 “When the Son of Man comes in his glory, and all the angels with him, he will sit on his glorious throne. 32 All the nations will be gathered before him, and he will separate the people one from another as a shepherd separates the sheep from the goats. 33 He will put the sheep on his right and the goats on his left.
    34 “Then the King will say to those on his right, ‘Come, you who are blessed by my Father; take your inheritance, the kingdom prepared for you since the creation of the world. 35 For I was hungry and you gave me something to eat, I was thirsty and you gave me something to drink, I was a stranger and you invited me in, 36 I needed clothes and you clothed me, I was sick and you looked after me, I was in prison and you came to visit me.’
    37 “Then the righteous will answer him, ‘Lord, when did we see you hungry and feed you, or thirsty and give you something to drink? 38 When did we see you a stranger and invite you in, or needing clothes and clothe you? 39 When did we see you sick or in prison and go to visit you?’
    40 “The King will reply, ‘Truly I tell you, whatever you did for one of the least of these brothers and sisters of mine, you did for me.’
    41 “Then he will say to those on his left, ‘Depart from me, you who are cursed, into the eternal fire prepared for the devil and his angels. 42 For I was hungry and you gave me nothing to eat, I was thirsty and you gave me nothing to drink, 43 I was a stranger and you did not invite me in, I needed clothes and you did not clothe me, I was sick and in prison and you did not look after me.’
    44 “They also will answer, ‘Lord, when did we see you hungry or thirsty or a stranger or needing clothes or sick or in prison, and did not help you?’
    45 “He will reply, ‘Truly I tell you, whatever you did not do for one of the least of these, you did not do for me.’
    46 “Then they will go away to eternal punishment, but the righteous to eternal life.”

    Thus ends today’s lesson on Christian charity.

    • Brad Nelson Brad Nelson says:

      Damn you, Mr. Kung. You just cost me ten more dollars. I can’t read that and do nothing.

      And I’m more of a goat. Frankly, I think we’re all pulled in a lot of directions. There are so many people who have made begging a profession. There are so many shysters running scams. There are so many people pretending to need help who are only mooching or, worse, are setting you up for violent crime.

      When a strangers asks me for something, unless it is a child or an elderly person, I beg off. I won’t have anything to do with them absent some concrete evidence there is some immediate need. (I wouldn’t walk past a car accident, for instance.)

      I hope Jesus would amend those words that you quoted just a little for today’s world that is corrupted by moochers and thieves. There is no requirement whatsoever to be a sucker or put yourself in needless danger.

      So, god almighty, donating to a cause like this online is just what the doctor ordered. It’s safe and you know you’re not being scammed. The many so-called Christians who read this should perhaps take those words to heart. Make a donation and, in this instance, let the left hand know what the right hand is doing…so that we can keep a running total. Let us know how much you donated so that we can reach our goal of $200.00.

    • Timothy Lane says:

      I recall hearing a song — I think by Johnny Cash — that dealt with this topic. It involved a man who heard that Jesus was going to visit him, and waited for him — meanwhile helping a few needy people who came to his door.

      • Brad Nelson Brad Nelson says:

        Didn’t find it offhand. Here’s an oldie but goodie. Worth five bucks for sure. Never to proud to pimp for a good cause.

        His Man in Black touches on that theme, and is at least worth $7.50. But I don’t know if it’s the one you’re talking about.

  8. Brad Nelson Brad Nelson says:

    There once was a pledge drive for FRAXA
    An arm and a leg we don’t ask ya
    We’re told with a smile
    To go the extra mile
    But five bucks is too far, eh Mastuh?

  9. Brad Nelson Brad Nelson says:

    There once was a child who was bent
    But wasn’t her character ’twas rent
    Just born with a bout
    Of a gene sticking out
    All of five bucks might help make a dent

  10. Sasa Zorovic says:

    A great, great cause!!!

    • Brad Nelson Brad Nelson says:

      It indeed is a great cause, Sasa. I don’t know if you’re connected with FRAXA. If you are, I’ve heard from trusted friends that the foundation does a very good job.

      I hope one and all can show their Christian charity and contribute at least $5.00 (and then let us know here so that we can keep a running total…our goal is at least $200.00).

      I don’t have any children or immediate relatives who suffer from this genetic disorder. And I have never had a pledge-a-thon to solicit donations for this site…and I likely never will. But all the “free riders” who have not contributed to the maintenance of this site should seriously think about living by their Christian or conservative ideals and donating $5.00 to this cause.

      If not, then please spare me all the god-talk about how god is great, in charge of our destinies, etc. We need acts, not just talk. I should say, rather, that those children and adults suffering from this genetic disorder need action, not talk. Talk is cheap. Giving $5.00 to this cause is an ennobling action.

  11. Brad Nelson Brad Nelson says:

    You know, I don’t ask much around here. I’ve hosted this site, free of charge to most of you. I don’t do pledge drives for maintenance of the site. And I don’t take your money for granted. But, good god, with all the Jesus talk around here and talk of moral absolutes and being conservative and getting government out of our lives so that we can do things ourselves…

    I must say, I’m a little disappointed that many of you can’t even pony up $5.00 for a good cause. The money does me no good. But I just think it’s the duty of any semi-public entity to try to give a little something back…not for the sake of image (we have none) but for the sake of doing a good thing.

    So make a pledge and post what you pledged here so we can keep a running total. Our goal is $200.00. We’re at $105.00 plus whatever our resident Koch Brother, Mr. Tarzwell, has anonymously contributed. But don’t be anonymous. Shut me up. I don’t actually like haranguing people and shoving their supposed principles back in their face. And, really, since I intend to make up any shortfall as I did last pledge drive, I’d like to save a buck or two. I’m not a rich man by any means.

    • Gibblet says:

      Brad, I do hope they find a cure for this disease. And furthermore, I do not want to be a stumbling block on your way to a personal relationship with Jesus. Therefore, I have donated the remaining balance on my debit card, $9.74! Keep up the good work.

      • Brad Nelson Brad Nelson says:

        LOL. Love it. A nice round number like nine dollars and seventy-four cents. Reminds me of one of the best scenes in “It’s a Wonderful Life” where George is handing out his own money to survive a run on the banks. Ellen Corby, as Mrs. Davis, says she wants “$17.50.” Apparently Frank Capra had pulled Corby aside before this scene and asked her to ask for an odd amount just to get a genuine surprised look from Stewart…which is exactly what happened.

        Also, Gibblet, you’ll be receiving in the mail one of our pledge premiums. This is a very nice t-shirt that has written in large letters on the front, “I’m not a phony Christian…I gave to the FRAXA Foundation.” 😀

        • Gibblet says:

          “very nice t-shirt”

          Thanks Brad…..it will be a perfect compliment to the crown and wings.

          • Brad Nelson Brad Nelson says:

            The halo goes without saying. I’ve seen it. 😀 But thanks again for supporting a good cause.

          • Kung Fu Zu Kung Fu Zu says:

            St.Paul wrote;

            In everything I did, I showed you that by this kind of hard work we must help the weak, remembering the words the Lord Jesus himself said: ‘It is more blessed to give than to receive.’ “

            Acts 20:35, NIV

            Don’t you feel better?

            • Brad Nelson Brad Nelson says:

              Yes I do. It’s hard work haranguing people and holding them to their principles, but it feels good when it works.

              Oh…you were talking to Gibblet. Well, I suspect her contribution comes from a deeper place than my haranguing…either that or it amuses her to think she’s given me a small victory. Hahahah. Today StubbornThings, tomorrow Jerry’s Kids! There is no limit.

              But seriously. Thank you, Gibblet. Whether you responded to pier pressure (I don’t know that I actually have much hydraulic fluid in my pier pressure), you gave to a good cause. Either way, it was a small price to pay to get your “I am not a phony Christian” t-shirt. They’re on back-order, by the way. Way back.

              I’ve got a friend in the business. I think next year I actually will have ten or so t-shirts done up with some smart aleck saying on them. We can think about that then.

            • Brad Nelson Brad Nelson says:

              In fact, Mr. Kung, speaking of t-shirts, I do think I owe Gibblet just that. Here it is. It will have to remain a virtual one for the moment but she can wear it with virtual pride:

              “Not

              • Gibblet says:

                The shirt looks great, Brad! I’ll wear it while I sing this song:

                I’M A SINNER SAVED
                Verse 1:
                Back there in the garden
                the perfect couple made a choice
                and creation has been groaning since that day

                Then You sent Your Perfect Son
                The Savior, Jesus Christ
                A sinless life to give, the debt to pay

                Chorus:
                Let Your mercy fall on me to soothe my aching soul
                Lead me, Lord, along the narrow way
                Help me make the choice that brings me back to You
                Then perfect, You will see me on that day.

                Drive away the darkness that prideful ways invite
                Your glory, make it shine upon my face.
                Until that great Oneday, when I’ll live with You
                I’m a sinner saved by Your Amazing Grace!

                Verse 2:
                Now I’m the one who makes the choices
                I’m the one who fails
                to live each moment walking in Your light

                The tainted blood of Adam
                is pounding in my heart
                Lord, help me live by faith and not by sight

                Bridge:
                Make me over, wash away the pain that guilt can bring
                Lift me up to see Your face, Your praises I will sing

                Chorus:
                Let Your mercy fall on me to soothe my aching soul
                Lead me, Lord, along the narrow way
                Help me make the choice that brings me back to You
                Then perfect, You will see me on that day.

                Drive away the darkness, that prideful ways invite
                Your glory, make it shine upon my face.
                Until that great Oneday, when I’ll live with You
                I’m a sinner saved by Your Amazing Grace!

                Gibblet 4/19/2013

              • Kung Fu Zu Kung Fu Zu says:

                I love it!

            • Brad Nelson Brad Nelson says:

              Gibblet, I stand corrected:

              “Not

              • Brad Nelson Brad Nelson says:

                There once was a fellow named Adam
                Who ate of an apple from madame
                Oh please give him a break
                It’s the fault of the snake
                And the hooters of Eve, she sure had ‘em

              • Brad Nelson Brad Nelson says:

                There once was a Christian named Gibblet
                Whose wisdom was more than a driblet
                But I spent too much time
                Just in trying to rhyme
                Can I segue this limerick to “riblet”?

              • Timothy Lane says:

                The hooters of Eve? Somehow I don’t think you mean owls. (There used to an ad for Hooters that dealt with the pun — and delightfully parodied Paul Harvey.)

  12. Gibblet says:

    The paltry sum, which to FRAXA I gave
    A virtual t-shirt afforded.
    Yet the limericks you penned,
    Were worth every cent,
    when I laughed so hard that I snorted!

    • Brad Nelson Brad Nelson says:

      LOL. I loved that one Gibblet. Here’s another haranguing limerick, all in a good cause.

      Snorting can be highly contagious
      And chortling will follow outrageous
      But the saddest of fact
      Goin’ to hell for the lack
      Of a heart not FRAXA capacious

  13. Brad Nelson Brad Nelson says:

    [Paid Advertisement]

    Throughout the Middle Ages, people spent a lot of money to buy official Church Indulgences that were used for a variety of purposes. Here at StubbornThings, we think five dollars is a bargain in order to buy certainty that you are not a phony Christian. We throw in a free t-shirt as well at the $5.00 level.

    But we aim to service all segments of this StubbornIndulgence market. All the money goes to a very good cause (FRAXA Research Foundation). The more you can give, the better. Here are the various Indulgent tiers for your contribution that buys certainty that:

    $5.00: I am not a phony Christian

    $10.00: I am not a ‘social justice’ Christian

    We have some higher tiers as well for those who have won life’s lottery:

    $25.00: I am not a Kumbaya Christian

    $50.00: Prosperity Gospel, Smoshperity Gospel

    Our premium level is also a relative bargain and will set you apart as one of the anti-elite (the elites being the Tourist Christian):

    $100.00: “I did not travel halfway around the world and spend a bazillion dollars on air fair, hotels, passport photos, and booster shots when I could have helped a neighbor right across the street who needs assistance just as much.”

    The last one requires printing on the back of the shirt as well. These offers are good only until the end of September, so act now. Operators are standing by. Just click here.

  14. Anniel says:

    Brad,

    I’m embarrassed to report that the site accepting donations for FRAXA does not go through at all on iPads. When I went to give more I found my first donation void. So now the site won’t even take any donation, even from from Bear’s PC. Please accept a $75.00 donation to ST for FRAXA. Thank you, Annie

    • Brad Nelson Brad Nelson says:

      Wow. Thanks, Annie. I saw that donation come in and it should be no problem just re-gifting it (via PayPal) to FRAXA. I’ll see if I have any problem with their donation mechanism.

      As it turns out, they don’t seem to have any way to accept payment from PayPal so I just charged $75.00 to my credit card and I’ll transfer that PayPal donation to you into my checking account…or more likely just leave it there for future purchases.

      Also, I noticed an option for “StubbornThings pledge drive” as to how to mark those donations. That’s pretty considerate of them to do that.

  15. Brad Nelson Brad Nelson says:

    Annie has donated an additional $75.00 dollars which makes contributions from her family $125.00 in total. That qualifies her for a t-shirt at the $100.00 StubbornIndulgence level as specified earlier in this thread.

    Here’s your pledge premium. Wear it (virtually) proudly (pride in the old-fashioned sense…not the rainbow sense).

  16. Brad Nelson Brad Nelson says:

    Many thanks to those good (not vapidly “nice”) people out there who contributed to the FRAXA fundraising drive which ends tomorrow. I think we’re still a little short. But virtue in this nation is in short supply. I will write a check and make up the difference (while putting the many “real” Christians out there to shame).

    But I’m glad to do it. The adult world has been thoroughly polluted by those who say they “care” but won’t actually do anything to improve things. Helping today’s children (and future children) with this genetic disease is a way to unequivocally aid the innocent.

    But whoso shall offend one of these little ones which believe in me, it were better for him that a millstone were hanged about his neck, and [that] he were drowned in the depth of the sea.

    Thanks again for those who contributed. There’s still time to help meet our goal here of $200.00 by the end of September. Somebody do the math, but I think we’re about $50 short. And no one who has already contributed should contribute again. I want to motivate the slackers.

    • Timothy Lane says:

      I might be able to contribute, but right now my financial situation is in flux, and I can’t be sure what I will be able to afford. The fact that a move into smaller (and easier) quarters is becoming essential (and maybe even urgent, due to the bedbug problems has a lot to do with it.

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