by Brad Nelson 8/23/16
It has been a couple of years since I nominated Fraxa Research Foundation as StubbornThings’ official charity. I believe it is time to remind our readers about this fine organization and to open their wallets once again. Donate here.
Fraxa Research Foundation was founded over twenty years ago by parents of children afflicted by Fragile X Syndrome. Fragile X syndrome is the most common inherited cause of autism and intellectual disabilities. The disorder is the result of one gene malfunctioning and not producing a specific single protein, which is required for normal development of the brain.
Fraxa’s goal is simple — to find a cure for Fragile X Syndrome. In pursuit of this goal, Fraxa has funded $25 million in scientific research across the world. Some of this research may also help find treatments for autism and other mental disorders.
To give you an idea of the quality of the research being funded by Fraxa grants, it important to mention that there are three Nobel Laureates on Fraxa’s Scientific Advisory Board. One of these is Dr. James Watson, the discoverer of the DNA double-helix.
Some of the research projects presently being funding by Fraxa are;
1) A project at the University of Texas at Austin lead by researchers Daniel Johnston, PhD, and Jennifer J. Siegel, PhD, in which they are trying to improve memory in fragile X mice.
2) A project undertaken by French scientists Barbara Bardoni, PhD, and Thomas Maurin, PhD, to identify new drugs to improve treatments in patients with fragile X.
3) Fraxa has also funded one of the founding scientists of Fulcrum Theropeutics, Jeannie Lee, MD, PhD, of Harvard University, and has been working with others on the new Fulcrum team. Fulcrum’s aim is to develop small molecules to control gene expression in order to control genetic on- and off-switches of disease genes.
At the risk of being redundant, I believe it’s time that conservatives stop bitching about the state of things and actively do something to make the world a better place. We’re supposed to be the compassionate people who believe in direct action rather than just sitting around waiting for government to solve our problems. Contributing to Fraxa Research Foundation meets this requirement.
Click here to go immediately to the Fraxa page where it is as easy as pie to make a small donation. You may even send a check by mail. Once you do either, post what you’ve donated here so that we can keep a running total. The goal is a modest $200.00.
I won’t bore you, or insult your intelligence, by saying that contributing even just $5.00 is like skipping one trip to Starbucks. If we measured everything in this way (via liberal guilt, that is) we’ve never drink another damned cup of coffee again in our lives. So keep your coffee, but surely you can do without adding that one bit more to your tattoo. Or buying a pack of Pokemon Go lucky eggs. Or buying the latest crap pop CD full of screeching noises. You can find a buck or two somewhere. There but for the grace of a shorter FMR1 gene on the X chromosome go I.
This isn’t about help for people who through their own abuse of their bodies have come to harm. These are truly the innocents, just a bit of bad luck with that FMR1 gene sticking out a little and switching off production of a needed protein that is involved in brain development and other functions. This isn’t some stupid-ass university dean asking for money to build a “safe space” for punk-ass, liberal-ass Pajama Boy and Pajama Girl students. This is the real world…which still exists. And try to tell me that a $5.00 donation won’t make you feel as if you’d done something real in this world that is increasingly a product of unreality, of scripted marketing and baloney.
I’ll start by ponying up $25.00 to get things going. But don’t make me beg. Consider $5.00, at minimum, penance for voting for or supporting Trump. And just an an incentive, if by the end of September the totals reach $300 or more, I will vote for Donald Trump for president. There’s your incentive if helping a child (and perhaps your child or future grandson) were not enough of one.
Brad is editor and chief disorganizer of StubbornThings.
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